We do medical mysteries and invisible (not imaginary) chronic illness! 

This is a primarily telemedicine clinic. There are some in-person options at our clinic in Redmond, WA.

The EDS Clinic treats all of you at every visit: HEDS/HSD, POTS, MCAS, and the related disorders. We recognize that all of these issues overlap and we cannot treat each in pure isolation. Your physical and mental health suffer together. We have hope that they can improve!

Our founder and CEO Rebecca Mass-Krajewski (she/her) ARNP-BC has been honing her skills for years. She is a "professional patient" with Hypermobile EDS (HEDS), Postural Orthostatic Tachycardia, Ankylosing Spondylitis, and other related issues.  

There was no one to help her when she was diagnosed with HEDS so she became the person she needed. As a complicated patient and a health care provider she acquired specific knowledge through years of research, medical courses, patient interactions. She continually expands this knowledge with . 

She wanted to be a detective but pivoted into health care in college! Nowadays she finds that these skill sets go together extremely well.  Read her full story HERE. She is growing a team of professional zebras who understand your health and life, and also have specialized knowledge in Hypermobility and the related disorders. 

She goes by simply "Rebecca" because she prefers it! 

If you are not yet diagnosed with Hypermobility Spectrum Disorder, EDS, POTS, or MCAS but think you have them we gather what you have already done, investigate any remaining areas, potential diagnoses, and do the ongoing management. 

If you are already diagnosed with Hypermobility but think you have EDS we can determine the difference, order any tests or images needed, and resolve all the questions in your head.  

If you already have diagnoses of EDS, POTS, MCAS or the other related disorders we do complex chronic medication and intervention management.  

You do not need a referral from your specialist or PCP. We already believe you. 

We are a great starting point for anyone who has deep-dove the internet after a physical therapist or specialist commented that their injuries could be related to hypermobility. We do not belittle your online research here.  

We are also a great fit for the experienced HEDS, POTS, MCAS person who is overwhelmed with trying to coordinate their medical team and treatment options. 

We will see you for Hypermobility, Joint Spectrum Disorder, Ehlers Danlos, and everything in-between. There is huge overlap in complexity with these diagnoses and none can be looked at strictly in isolation. 

We know you want to feel better but it is hard when no one seems to believe you or understand your bendy body. 

We complete expert results-oriented evaluation and treatment of hypermobility and the associated disorders WHILE working toward HEDS/JHS diagnosis. A true diagnosis involves in depth labs, images, and genetic testing. EDS exists on a spectrum and has substantial overlap with other rare diagnoses. This is why it is a diagnosis of exclusion. 

We feel HEDS is a 1 in 250-500 person diagnosis (not 1 in 5000 as internet searches say). While the diagnosis checklist for HEDS appears simple, Criterion 3 (see attached) requires investigation as there are many similar appearing zebra diagnoses. 

1. New Client Package:

These are 4 customized visits over telemedicine tailored to your health needs. This package includes:

> Analysis of prior paperwork images, labs, and records.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Personalized supplement recommendations for your symptoms.

> Detailed labs ordered to thoroughly investigate POTS, MCAS, and potential autoimmune issues. These are processed through insurance.

> Genetic testing if needed. Ordered through Invitae or Genedx with insurance paperwork completed for potential coverage.

> Review your lifetime health and apply to data to health today.

> Comprehensive multi-pronged plan for your health investigation and improvement.

> Follow-up direct messaging between visits as needed by you.

> Address all your concerns all at once.

This self-investment is $1797. Appointments are booked HERE. We begin all new clients with 4 sessions because this gets the best results. 

 2. Consults

This is a free 15 minute consultation. The consult includes:

> Honest and empathetic interaction to see if your health would benefit from a Medical Detective.

> Determine what is missing or broken about your health.

> You ask the most pertinent questions of our skills applied to your health.

There is no patient/client-provider relationship established at a consultation.

3. Diagnosed-in-a-Day

This appointment is for you if you have been told you likely have HEDS, POTS or MCAS, but no one will make it official or help you make life more livable. It is for someone who wants to jumpstart health improvement and get the answers they deserve. What's included:

> Go beyond the potential HEDs diagnosis.

> Explore if you could have POTS, MCAS, Dysautonomia or an autoimmune disorder.

> Analysis of prior paperwork, images, labs, and records.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Order genetic testing if needed to rule out other forms of EDS.

> Determine and order specific research and results-oriented labs chosen specifically for you based on symptoms and health.

> 3+ months worth of plans, interventions, medications, and follow-up labs in stepwise approach.

> Follow-up direct messaging.

We do all of this in one day. This day is about you. Allow us to validate you, decrease the gaslighting, and give you a multifaceted plan for improvement.

4. Our Newsletter

This is our newsletter. Signup HERE to have it sent to your email.

5. VIP Intensive Program:

This is a life transformation over 60 days with in-depth functional medicine lab investigation.

You are someone who likes all the information. You want to understand why, what is off, and what can be done about it. You have never had testing or direct provider access like this like this!

What's included in the transformation:

> Functional medicine testing ($1400 value) for neurotransmitters, salivary cortisol levels, inflammation, oxidative stress, methylation issues, mitochondrial dysfunction, omega imbalances, and neurotransmitter abnormalities.

> Explore HEDS and if you could have POTS, MCAS, Dysautonomia or an autoimmune disorder.

> Analysis of prior paperwork, images, labs, and records.

> On-the-go problem solving over Voxer (secure walkie talkie) with us as often as you need.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Order genetic testing if needed to rule out other disorders or forms of EDS.

> Determine and order specific research and results-oriented labs chosen specifically for you based on symptoms and health.

> Ongoing adjustments to plans, interventions, medications, and follow-up labs.

> Follow-up direct messaging.

The test results direct care to get the best individualized results for your body. We make a highly individualized plan from your life history, personal assessment and tests. The result is more energy, less body pain, increased enjoyment of every day, and long desired answers! HERE is the application for the VIP program. There are extremely limited spots. This program is for someone who has sufficient finances and wants frequent 1:1 care to speed up improvement and answers.

6.  Medical Detective Certificate Program

If what you read here resonates and you are a prescribing provider (NP, PA, ND, FM, MD, DO) please get in touch HERE so we can grow a nationwide network of expert providers. We will be starting the program Summer/Fall 2023.

Telemedicine means in any state we have a license in we can see you virtually for a visit. Currently these are in Washington state, Nevada, and Oregon. You have to physically be located in a state where our providers are licensed for us to be your provider. Government rules, not ours.

Fall 2023 we will be starting Medical Mystery Guidance Sessions for those out of state or country who desire access to our knowledge, but for whom location is a barrier.

We are working to expand The EDS Clinic to other states. If you are a licensed provider who would like to work in HEDS, POTS, MCAS, please email us at [email protected]!

 Without our health it is challenging to improve our lives. We enable truly living again.

We do not directly bill insurance. All appointments are paid upfront at the time of booking. HSA funds can be used. Payment plans are available.

There is potential for reimbursement through insurance after you submit the bill to them. From reimbursement the insurance companies send us we see that clients are reimbursed 50-100%. Out of network coverage helps with higher percentiles. 

We provide Superbills which are detailed receipts with CPT and ICD10 codes which can be used to obtain reimbursement from commercial insurance companies. We recognize and apologize for how this impacts you.

To our knowledge, there is no qualified provider for your medically necessary services in most health insurance networks. This is a deficiency of their network which means insurance has an obligation to consider reimbursement for out-of-network provider cost. This is true almost nationwide with HEDS. If we are able to take insurance in the future it will be updated here on the website.

Appointment fees are based on duration of your appointment.*

There are no additional fees for visits although we provide comprehensive services outside of visits as well. We know that quick visits for standard issues do not work for complicated folks.

Outside of visits:

-Review prior paperwork (30-90 minutes)

-Create a lengthy typed plan for you with links to resources (60-90 minutes)

-Obtain outside consultations on results (30-90 minutes)

- Complete referrals, order medications, coordinate supplements, and order complex laboratories

This equates to a 90 minute visit to 150 minutes - 240 minutes of provider time spent on figuring out your mystery and working tot create a plan that elevates your health.

Our clients leave visits feeling hopeful and know that they have new options for improvement.

*Appointment types will be changing to membership mid-July 2023.

**Consults are to see if our services are a good fit for your needs. This occurs prior to a New Client Visit. You can be located anywhere. To become a patient you must be located or able to travel to a state we are licensed in.

It is a virtual visit over video for Hypermobility/EDS. Simple as that! For most Hypermobile/EDS appointments there is no need to prove yourself by having pain triggered by a physical assessment. We are successful at Beighton scoring over video, as well as evaluating the many other areas that lead to formal HEDS diagnosis. While can be validating to be seen in-person, it is not critical. With other specialties like Spine, it is important to be seen in-person.

Prior to your appointment you gather records to upload to our system. You are sent a detailed list when your appointment is booked. All your records are reviewed prior to your appointment. Pre-appointment paperwork includes a detailed intake for these specific overlapping health concerns, more specific than any you have done prior.

During your appointment you have time to tell your whole story, review all your symptoms, get answers, and ask more questions. After your appointment you get a written plan of recommendations for each area, as well as orders, referrals, medications or supplements. We often hear that in one visit patients get more clarity, information, and hope than in numerous years seeing non experts.

To work with us it is a requirement that you have a primary care provider (PCP) and see them yearly in order for us to care for your Hypermobile EDS and associated issues. This also helps with meeting certain medication prescribing needs. We prescribe everything related to your HEDS, POTS, MCAS, but need primary care to assist with acute treatments (UTI, sinus infection) and some ongoing issues (thyroid medication, birth control).

Records gathering tips:

- Most of the large hospital organizations in WA use MyChart/Epic Electronic Medical Record. MyChart has all labs and clinic notes easily downloadable through your MyChart login.

- If you are gathering records from multiple systems then Sync.MD is helpful for personal medical record requests. It is both a mobile app & a website.

- Many medical groups in WA (such as Evergreen & Swedish) endorse it and are already connected to their platform.

- Sync.MD lets you request records (for a small fee of about $5) and provides 2 methods to share your records: upload online or via fax. We recommend upload online as you get copy.

- It is very helpful in getting records from places such as Neuro Assoc of WA (Dr. Armitano) or small clinics which are only set up to fax or print+mail your records.

We strive to see new clients within 3 weeks.

August 2023 is the exception. We only see existing clients in August as previously arranged. There are no consults during August either.

Click the book appointment button to find out!  There are occasional weekend appointments.

If you have a restrictive schedule please email or text so we can arrange a time that works for you. We know 9-5 does not work for everyone.

Clients who see and feel improvement working with us are motivated, have a shred of hope, and are ready to change. They are able to follow through on plans that are finetuned to their health history and current symptoms. The clients we see improve are able to follow-up regularly, obtain necessary tests, and trial new supplements. They are not limited to standard healthcare options. They have the finances to support non-traditional options. 

Supplements are used to decrease inflammation, treat a root cause of pain, and balance vitamin levels. Functional medicine testing is often used to determine the root source of an issue or decrease inflammatory pain.  

New client visits are highly validating. We shine in follow-up visits as complex chronic diseases improve most with adjusting plans and accountability. In one visit we give hope and direction. In one year, you will see a transformation with less body pain and less fatigue! 

We know that with Hypermobility and EDS clients go through patterns of intensely working on health issues, getting demoralized, then trying again. While we do not have a magical pill for boundaries or mindset, we coach you toward making decisions that improve your health 

HERE is Rebecca's story. This is vulnerable for her. In being open about it highlights how those of us with Hypermobility and EDS can suffer, while looking healthy and being resilient!

Rebecca Mass-Krajewski (she/her) ARNP-BC is a Hypermobility & Ehlers Danlos expert. She acquired specific knowledge because there was no one to guide her on her own journey. She is a "professional patient" with Hypermobile EDS, Postural Orthostatic Tachycardia, and Ankylosing Spondylitis. 

She is an ARNP-BC which means "Advanced Registered Nurse Practitioner (who is) Board Certified."  She is not a MD, DO, or ND, nor does she imply she is. She went on to study Functional Medicine because standard medicine was lacking for invisible and chronic illness. The goal of Functional Medicine is to get at the root cause, and this is critically important with chronic illness.

She is a medical detective who prides herself on taking the disjointed pieces of health information and creating the true picture. This removes obstacles to high quality care and enables transformations that reduce chronic pain and decrease fatigue. She strongly feels that it does not have to be so hard or lonely being a complicated patient. Too many hypermobile people are gaslit by health care. 

HERE are Rebecca's extensive qualifications.

Rebecca Mass-Krajewski is an ARNP-BC. This means "Advanced Registered Nurse Practitioner (who is) Board Certified."

She is not a MD, DO, or ND, nor does she imply she is. Instead of returning for another masters, or doctorate she chose to study Functional Medicine. The goal of Functional Medicine is to get at the root cause. This is particularly important with hEDS and the related disorders!

Nurse practitioners (NPs) start out as Registered Nurses (RNs). RNs provide and coordinate patient care, educate patients and the public about various health conditions. They provide educational advice and emotional support to patients and their families. RNs can go back for a masters or doctoral degree in nursing. They pick their specialty when they start, whereas MDs pick a few years in. 

NPs are trained to assess patient needs, order and interpret diagnostic and laboratory tests, diagnose disease, formulate and prescribe treatment plans. NPs are known for having the brain of a doctor with the empathetic heart of a nurse. Most NPs start in family practice. They often move in to specialty practice once they find their passion (like Rebecca).

A primary difference between physicians and NPs is that all doctors can prescribe medication to patients as a part of their duties. NPs prescribe medicine, but in some states, they must be “overseen” by a MD to prescribe. This looks like the MD looking over their charts for about an hour every few months or discussion/consults when needed.

In 2023 in the United States 32 states have fully independent practice for NPs.

The main difference Rebecca's patients tell her is that she explains the why of what they experience as well as how medication or procedure might help.

Rebecca is not for everyone. She works alongside your other providers but is not the only provider on your team.

We are currently interviewing other providers to join The EDS Clinic Team.

Our mission at The EDS Clinic is to provide results-oriented expertise for the diagnosis and treatment of hypermobility, hEDS & the related disorders to enable a total body transformation with less body pain and less fatigue.

Our vision is to create a network of providers in the United States and abroad, trained in Rebecca Mass-Krajewski's ARNP-BC framework, to ensure all people suffering from these overlapping, complex, and chronic disorders have expert providers, evidence-based answers, and hope for feeling better.

We value: Self-trust, Health, Rest, Connecting, Empathy, and Knowledge.

We feel strongly that love is love, science is real, black (brown & all melanated) lives matter, trans rights are human rights, neurodivergence is valuable and beautiful, and women's rights are tied up in all of our own liberation. 

We will fully support you with accommodations and accessibility in any way possible during our time together. You are not a burden. Mainstream healthcare exists in a culture of ableism and exclusion. 

HERE are our small business pledges and commitments to anti-racism, inclusivity, and empathy.

Rebecca Mass-Krajewski is an ARNP-BC. This means "Advanced Registered Nurse Practitioner (who is) Board Certified."

She is not a MD, DO, or ND, nor does she imply she is. Instead of returning for another masters, or doctorate she chose to study Functional Medicine. The goal of Functional Medicine is to get at the root cause. This is particularly important with hEDS and the related disorders!

Nurse practitioners (NPs) start out as Registered Nurses (RNs). RNs provide and coordinate patient care, educate patients and the public about various health conditions. They provide educational advice and emotional support to patients and their families. RNs can go back for a masters or doctoral degree in nursing. They pick their specialty when they start, whereas MDs pick a few years in. 

NPs are trained to assess patient needs, order and interpret diagnostic and laboratory tests, diagnose disease, formulate and prescribe treatment plans. NPs are known for having the brain of a doctor with the empathetic heart of a nurse. Most NPs start in family practice. They often move in to specialty practice once they find their passion (like Rebecca).

A primary difference between physicians and NPs is that all doctors can prescribe medication to patients as a part of their duties. NPs prescribe medicine, but in some states, they must be “overseen” by a MD to prescribe. This looks like the MD looking over their charts for about an hour every few months or discussion/consults when needed.

In 2022 in the United States 25 states have fully independent practice for NPs.

The main difference Rebecca's patients tell her is that she explains the why of what they experience as well as how medication or procedure might help.

Rebecca is not for everyone. She works alongside your other providers but is not the only provider on your team.

Other Hypermobility & EDS resources in no particular order:

The Ehlers Danlos Society

Dysautonomia International

Hypermobility MD, Linda Bluestein MD & her Bendy Body Podcast

PRISM Spine and Joint

The Dysautonomia Project

The Mast Cell Disease Society

Up-To-Date Clinical

Manifestations and Diagnosis of EDS

EDS Virtual Conference 2022

International Symposium for EDS 2022