You deserve to feel limitless and energetic.

We do medical mysteries and invisible (not imaginary) chronic illness! Here at The EDS Clinic, you don't need to explain yourself. We already believe you.

This is a primarily telemedicine clinic. There are some in-person options at our clinic in Redmond, WA. These are available as requested by existing clients and an option a few times a year. 

The EDS Clinic treats all of you at every visit: HEDS/HSD, POTS, MCAS, and the related disorders. We recognize that all of these issues overlap and we cannot treat each in pure isolation. Your physical and mental health suffer together. We have hope that they can improve!

Our founder and CEO Rebecca Mass-Krajewski (she/her) ARNP-BC has been honing her skills for years. She is a "professional patient" with Hypermobile EDS (HEDS), Postural Orthostatic Tachycardia, Ankylosing Spondylitis, and other related issues.  

There was no one to help her when she was diagnosed with HEDS so she became the person she needed. As a complicated patient and a health care provider she acquired specific knowledge through years of research, medical courses, patient interactions. She continually expands this knowledge with . 

She wanted to be a detective but pivoted into health care in college! Nowadays she finds that these skill sets go together extremely well.  Read her full story HERE. She is growing a team of professional zebras who understand your health and life, and also have specialized knowledge in Hypermobility and the related disorders. 

She goes by simply "Rebecca" because she prefers it! 

If you are not yet diagnosed with Hypermobility Spectrum Disorder, EDS, POTS, or MCAS but think you have them we gather what you have already done, investigate any remaining areas, potential diagnoses, and do the ongoing management. 

If you are already diagnosed with Hypermobility but think you have EDS we can determine the difference, order any tests or images needed, and resolve all the questions in your head.  

If you already have diagnoses of EDS, POTS, MCAS or the other related disorders we do complex chronic medication and intervention management.  

You do not need a referral from your specialist or PCP. We already believe you. 

We are a great starting point for anyone who has deep-dove the internet after a physical therapist or specialist commented that their injuries could be related to hypermobility. We do not belittle your online research here.  

We are also a great fit for the experienced HEDS, POTS, MCAS person who is overwhelmed with trying to coordinate their medical team and treatment options. 

We will see you for Hypermobility, Joint Spectrum Disorder, Ehlers Danlos, and everything in-between. There is huge overlap in complexity with these diagnoses and none can be looked at strictly in isolation. 

We know you want to feel better but it is hard when no one seems to believe you or understand your bendy body. 

We complete expert results-oriented evaluation and treatment of hypermobility and the associated disorders WHILE working toward HEDS/JHS diagnosis. A true diagnosis involves in depth labs, images, and genetic testing. EDS exists on a spectrum and has substantial overlap with other rare diagnoses. This is why it is a diagnosis of exclusion. 

We feel HEDS is a 1 in 250-500 person diagnosis (not 1 in 5000 as internet searches say). While the diagnosis checklist for HEDS appears simple, Criterion 3 (see attached) requires investigation as there are many similar appearing zebra diagnoses. 

We recognize the limitation of medical licenses and where people are physically located. You must be in a state of our licensure to be a client of The EDS Clinic. We will have more state options in 2024 after we have trained additional Medical Detectives. Currently we care for clients in WA, OR, and NV.

*START with taking our Health Odyssey Quiz* This helps determine where you are in your health journey and give you specific tips. 

1. Medical Detective Consults

This is a free 20 minute consultation.

Everyone who is thinking about becoming a client of The EDS Clinic starts with a consult. This is to ensure that you are in a place in your health journey where we will be a good fit for you. We no longer take on new clients without a consultation.

Consults are for people in WA, OR, and NV. Additionally, if you are able to come to WA for an in-person visit we can establish a relationship that enables continuing care. If this is not possible, then out-of-state and out-of-country people are best served with a Medical Detective Guidance Session.

The consult includes:

> Honest and empathetic interaction to see if your health would benefit from a Medical Detective.

> Determine what is missing or broken about your health.

> You ask the most pertinent questions of our skills applied to your health.

There is no patient/client-provider relationship established at a consultation.

2. New Client Membership:

This membership is how to start working with The EDS Clinic. We enable validating and life changing transformations in 3 to 6 months.

We discuss all your concerns in depth and there is time for questions. There is no need to come back to discuss an "unrelated issue" as we feel everything is related. 

What's included:

> Fully customized Initial New Client Visit (90 minutes) and 5 Follow-Up Visits (60 minutes each). One visit a month for 6 months.
> Analysis of prior paperwork images, labs, and records.
> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.
> Personalized supplement recommendations for your symptoms.
> Detailed labs ordered to thoroughly investigate POTS, MCAS, and potential autoimmune issues. These are processed through insurance.
> Genetic testing if needed. Ordered through Invitae with insurance paperwork completed for potential coverage.
> Review your lifetime health and apply to data to health today.
> Comprehensive multi-pronged plan for your health investigation and improvement.
> Follow-up direct messaging between visits as needed by you without the hassle of "you need a visit to do that."
> Address all your concerns all at once.

> Open Clinic Hour online every month for your random questions between visits, and to be in community with other complicated-health folks.

*Disability and FMLA paperwork is not done at the first visit due to the complexity and need for review of all the applicable information to increase the chance of approval. We have a high approval rate.

*It can be paid in full or in payment plans. The total cost is $3497. It can be paid in full or installments.

3. Continuing Client Membership:

This membership is how to continue working with The EDS Clinic. It is for those who have already been working with The EDS Clinic in the last 12 months.

It is a 12 month membership.

What's included:

> 4 customized 60 minute visits over telemedicine, tailored to your health needs. Visits are scheduled every 90 days.

> 2 visits at 30 minutes each on demand
> Analysis of paperwork, images, labs, and records.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Personalized supplement recommendations for your symptoms.

> Detailed labs to investigate your concerns which are processed through insurance.

> Access to Functional Medicine testing.

> Follow-up direct messaging between visits as needed by you.

> Address all your concerns all at once.

> Open Clinic Online hour monthly for questions between visits and to be in community with other complicated-health folks.

It can be paid in full or in payment plans.

4. Diagnosed-in-a-Day

This appointment is for someone who is seeking formal diagnoses, already has a great deal of data, but no provider is comfortable to make it official. 

What's included:

> 2.5 hour visit (break at the mid point)

> Go beyond the potential HEDS diagnosis.

> Explore if you could have POTS, MCAS, Dysautonomia or an autoimmune disorder.

> Analysis of prior paperwork, images, labs, and records.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Order genetic testing if needed to rule out other forms of EDS.

> Determine and order specific research and results-oriented labs chosen specifically for you based on symptoms and health.

> 3+ months worth of plans, interventions, medications, and follow-up labs in stepwise approach.

> Follow-up direct messaging for 30 days.

This day is about you. Allow us to validate you, decrease the gaslighting, and give you a multifaceted plan for improvement.

This is not the best visit for someone who is new to these complicated health issues or who lacks a home care team to bring recommendations back to.

 *Many diagnoses happen the day of. If we need more information we ensure that proper and validated diagnoses are obtained within 30 days.

5. Medical Mystery Guidance Session:

These sessions were created because people like you asked for them! The goal of a Medical Mystery Guidance Session is to jumpstart improvement in complex invisible illness

You get to tell your story, ask questions, have your case analyzed, and return to your care team with results-oriented ideas.

You want to be heard. You deserve deserve guidance that enables forward motion in your health odyssey.

What's included:

> Tailored recommendations for supplements to reduce muscle aches and joint pain

> Discussion of the probable root cause of your bodies dysfunction

> Address potential missed areas that cause fatigue and pain

> A written plan to bring to your home health team with clear direction and recommendations

> How to grow a health team and how to to talk so provider's understand and want to help you

*MMGS is best for someone located outside WA, OR, or NV.

6. VIP Transformation Program:

This is a life transformation over 60 days with in-depth functional medicine lab investigation.

You are someone who likes all the information. You want to understand why, what is off, and what can be done about it. You have never had testing or direct provider access like this like this!

What's included in the transformation:

> Functional medicine testing ($1400 value) for neurotransmitters, salivary cortisol levels, inflammation, oxidative stress, methylation issues, mitochondrial dysfunction, omega imbalances, and neurotransmitter abnormalities.

> Explore HEDS and if you could have POTS, MCAS, Dysautonomia or an autoimmune disorder.

> Analysis of prior paperwork, images, labs, and records.

> On-the-go problem solving over Voxer (secure walkie talkie) with us as often as you need.

> Prescriptions for any necessary medications related to EDS, POTS, MCAS treatment.

> Order genetic testing if needed to rule out other disorders or forms of EDS.

> Determine and order specific research and results-oriented labs chosen specifically for you based on symptoms and health.

> Ongoing adjustments to plans, interventions, medications, and follow-up labs.

> Follow-up direct messaging.

The test results direct care to get the best individualized results for your body. We make a highly individualized plan from your life history, personal assessment and tests. The result is more energy, less body pain, increased enjoyment of every day, and long desired answers! HERE is the application for the VIP program. The application leads to a long consult. There are extremely limited spots. This program is for someone who has sufficient finances and wants frequent 1:1 care to speed up improvement and answers.

*You must be in WA, OR, or NV for VIP Transformation Program.

7.  The EDS Clinic Newsletter

This is our newsletter. Signup HERE to have it sent to your email.

8. Medical Detective Certificate Program

If what you read here resonates and you are a prescribing provider (NP, PA, ND, FM, MD, DO) please get in touch HERE so we can grow a nationwide network of expert providers. We know many providers who also have HEDS, POTS & MCAS who want to work in this field.

We should be starting the program Spring 2024. We have high demand and are building a rigorous program which takes time and resources. Our mission is to have medical detectives in every state. 

Telemedicine means in any state we have a license in we can see you virtually for a visit. Currently these are in Washington state, Nevada, and Oregon. You have to physically be located in a state where our providers are licensed for us to be your provider. Government rules, not ours.

Fall 2023 we will be starting Medical Mystery Guidance Sessions for those out of state or country who desire access to our knowledge, but for whom location is a barrier.

We are working to expand The EDS Clinic to other states. If you are a licensed provider who would like to work in HEDS, POTS, MCAS, please email us at [email protected]!

Without our health it is challenging to improve our lives. We enable truly living again. 

Investing in yourself can be hard. It brings up scarcity, money trauma, and anger with a health care system that has failed you. 

So what does this self-investment get you?

For every hour we spend with you, we spend another hour creating your plan, reviewing outside records, completing referrals, ordering medications, coordinating supplements, and determined which complex laboratories will give us the most insight. In some clients this means reviewing an entire file box worth of records! Why? To us it is important to see the full picture and review your health odyssey. Our clients leave visits feeling hopeful and know that they have new options for improvement. We changed our model to a minimum of 6 months because clients repeatedly experienced improved health, reduced medical trauma, and new sense of hope working with us consistently. With one-of visits there was too much to unpack, review, and investigate even for a highly skilled medical detective. 

To our knowledge, there is no qualified provider for your medically necessary services in most health insurance networks. This is a deficiency of their network which means insurance has an obligation to consider reimbursement for out-of-network provider cost. This is true nationwide with HEDS. If we are able to take insurance in the future it will be updated here on the website. 

Long term, the mission is to train enough medical detectives that we will be able to take insurance while not compromising our quality standards. You know how complicated these complex, chronic health issues are and just how little mainstream health care knows about them. A fifteen minute visit does not work. We all know this. 

We do not directly bill insurance. All appointments are paid upfront at the time of booking. HSA funds can be used. Payment plans are available. We recognize and apologize for how this impacts you.

We provide Superbills which are detailed receipts with CPT and ICD10 codes which can be used to obtain reimbursement from commercial insurance companies. We include that your network is deficient in terms of provider options on the Superbill itself as we find this helps increase the chance of successful reimbursement. 

There is potential for reimbursement through insurance after you submit the bill to them. From reimbursement paperwork insurance companies send us, we see that clients are reimbursed 50-100%. Out of network insurance coverage helps with higher percentiles. It remains unclear if any reimbursement is possible with Medicare, Medicaid, or state insurance plans.

It is a virtual visit over video for Hypermobility/EDS. Simple as that! For most Hypermobile/EDS appointments there is no need to prove yourself by having pain triggered by a physical assessment. We are successful at Beighton scoring over video, as well as evaluating the many other areas that lead to formal HEDS diagnosis. While can be validating to be seen in-person, it is not critical. With other specialties like Spine, it is important to be seen in-person.

Prior to your appointment you gather records to upload to our system. You are sent a detailed list when your appointment is booked. All your records are reviewed prior to your appointment. Pre-appointment paperwork includes a detailed intake for these specific overlapping health concerns, more specific than any you have done prior.

During your appointment you have time to tell your whole story, review all your symptoms, get answers, and ask more questions. After your appointment you get a written plan of recommendations for each area, as well as orders, referrals, medications or supplements. We often hear that in one visit patients get more clarity, information, and hope than in numerous years seeing non experts.

To work with us it is a requirement that you have a primary care provider (PCP) and see them yearly in order for us to care for your Hypermobile EDS and associated issues. This also helps with meeting certain medication prescribing needs. We prescribe everything related to your HEDS, POTS, MCAS, but need primary care to assist with acute treatments (UTI, sinus infection) and some ongoing issues (thyroid medication, birth control).

 Records gathering tips:

- Most of the large hospital organizations in WA use MyChart/Epic Electronic Medical Record. MyChart has all labs and clinic notes easily downloadable through your MyChart login.

- If you are gathering records from multiple systems then Sync.MD is helpful for personal medical record requests. It is both a mobile app & a website.

- Many medical groups in WA (such as Evergreen & Swedish) endorse it and are already connected to their platform.

- Sync.MD lets you request records (for a small fee of about $5) and provides 2 methods to share your records: upload online or via fax. We recommend upload online as you get copy.

- It is very helpful in getting records from places such as Neuro Assoc of WA (Dr. Armitano) or small clinics which are only set up to fax or print+mail your records.

We strive to see new clients within 4 to 6 weeks.

Please start with our quiz which will jumpstart you with what we would be recommending at a consultation. 

Our entire clinic exists to support brave people who have been looking for qualified, empathetic support where they feel seen and get results that have eluded them…sometimes for years. We know waiting for help is frustrating, but we are currently building out our capacity so we can help as many people who need us as possible.

We are focusing on training others to be Medical Detectives so that fewer people will have to wait for support in the future. As part of this, we are creating programs based on our extensive knowledge, gathered over a decade, about the go-to best options for hypermobility. These will help jumpstart those who are stuck, hopeless, or new to all this! We want everyone to have access to the amazing support we have been able to provide our clients, and in order to build that for you we are pausing taking on new people until early 2024.

Clients who see and feel improvement working with us are motivated, have a shred of hope, and are ready to change. They are able to follow through on plans that are finetuned to their health history and current symptoms. The clients we see improve are able to follow-up regularly, obtain necessary tests, and trial new supplements. They are not limited to standard healthcare options. They have the finances to support non-traditional options. 

Supplements are used to decrease inflammation, treat a root cause of pain, and balance vitamin levels. Functional medicine testing is often used to determine the root source of an issue or decrease inflammatory pain.  

New client visits are highly validating. We shine in follow-up visits as complex chronic diseases improve most with adjusting plans and accountability. In one visit we give hope and direction. In one year, you will see a transformation with less body pain and less fatigue! 

We know that with Hypermobility and EDS clients go through patterns of intensely working on health issues, getting demoralized, then trying again. While we do not have a magical pill for boundaries or mindset, we coach you toward making decisions that improve your health.

Other Hypermobility & EDS resources in no particular order:

The Ehlers Danlos Society

Dysautonomia International

Hypermobility MD, Linda Bluestein MD & her Bendy Body Podcast

PRISM Spine and Joint

The Dysautonomia Project

The Mast Cell Disease Society

Up-To-Date Clinical

Manifestations and Diagnosis of EDS

EDS Virtual Conference 2022

International Symposium for EDS 2022